If/when the disease breakes out in Felix it will already be too late for a cure. The first signs are, as in Mathias case, very hard to identify. Every fourth month the parents Fredrik and Helena takes him to the specialist team at Queen Silivias Children Hospital in Gothenburg for an MRI scan. They also test his spinal fluid. To be able to do this they have to put him to sleep using anesthesia. The time it takes before the results are analyzed is nervewracking for the family.